Lifetime Congenital Urology Program (L-CUP)

The Lifetime Congenital Urology Program was created to serve patients with urologic conditions diagnosed in childhood as they become adults and need to transition to an adult urology practice. It is run jointly by pediatric and adult urology in order to provide comprehensive long-term follow up and healthcare for patients with congenital urologic conditions.

• Spina bifida
• Neurogenic bladder
• Neurogenic bowel
• Bladder exstrophy or epispadias
• Intersex or disorders of sex development
• Cloacal anomalies
• Vesicoureteral reflux
• Hypospadias
• Prune belly syndrome
• Posterior Urethral valves
• Urologic cancers diagnosed in childhood
• Any other long-term urologic problem diagnosed in childhood

• The clinic is Co-Directed by Dr. Lindsay Hampson (adult reconstructive urologist) and Dr. Hillary Copp (pediatric urologist).
• The clinic occurs on the third Tuesday of each month. All new patients are seen by by a pediatric urologist and an adult urologist.
• All patients who are new to the Lifetime Congenital Urology Program will have their case discussed by a multi-disciplinary group of pediatric and adult urologists in a Congenital Urology Case Conference before clinic.
• Follow up will be with an adult urologist focused on providing lifetime congenital urologic care, with involvement of a pediatric urologist as needed.

• Your visit will be a telehealth visit. If we determine that you need any in-person studies or procedures we will schedule those after your first visit.
• We will ask you to fill out some questionnaires ahead of your visit. These are very important for making sure that we have all of the relevant information about you.
• The entire visit should last about an hour.

• If you use supplies (like catheters), have them with you so we can figure out exactly what you use and reorder them for you if necessary.
• Have the names of any doctors you see regularly (primary care doctor and any other specialty providers you see routinely).